
Aisha, a patient with beta thalassaemia major, from the United Kingdom
Overcoming challenges at school or at work
You may find that you miss school or work or have to call in sick due to treatment appointments or transfusions. This can lead to stress and worry.
While in education or at work, you should have the same opportunities as everybody else – and you may need additional support with this. As a beta thalassaemia patient, you have a right to workplace adjustments to make your everyday life safer and more comfortable.
There are various options and laws, and it can soon all become unfathomable. If you have a specific question on beta thalassaemia at school/university or at work, you can seek support here or from a patient organisation
Beta thalassaemia at school or university
As a school or university student, you may find that your beta thalassaemia has an impact on your education.
Perhaps your teachers or fellow students don't know what beta thalassaemia is or how it affects your life. You might also find that you cannot take part in certain activities at school or university.
Students with impairments, such as those caused by a chronic disease like beta thalassaemia, have the right to compensation for disadvantages. This compensation is enshrined in law, and means that the disease must not result in any disadvantages when it comes to learning or taking exams.1,2 Tell your school or university that you have a chronic condition. You can then discuss together what your compensation might look like.

Your rights
It doesn't matter what challenges you are faced with – it is always helpful to know your rights and the support to which you are entitled in order to make progress in your education and career.
Your road to success with beta thalassaemia at university, at school and on the job
Your treatment team will help you to maintain your physical and mental health while at school, university or work. They will give you advice as to how you can succeed in your education or job with your condition. It is worth getting in touch with a patient organisation in this case too. Patients there will be familiar with these situations and no doubt be able to offer you advice
Don't forget that you have certain special rights at school, at university or in the workplace. With the right support, you can definitely make a success of it!


Ressourcen-Hub
Unsere Unterlagen zum Herunterladen helfen Dir dabei, Dein Leben mit Beta-Thalassämie zu meistern.
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