Gaia, Betroffene mit Beta-Thalassämie major, beim Gehen

About "Find Your Path"

This website was developed by Vertex Pharmaceuticals (Germany) GmbH and aims to support you in your everyday life and with your visits to your doctor and therapist. Here, you will find ideas, tips and inspiring stories from other patients, as well as medical, legal and helpful information on the condition beta thalassaemia 

We hope that, with the help of the Community, you will find your own path.

At your age, an especially important question to ask yourself is "What do I want to become?". Perhaps you are about to graduate from school or start university studies, or you are looking for an apprenticeship or have possibly already found one. You must have so many questions about how to do all that with beta thalassaemia. Try not to worry about it – there are places to find help and support, and you also have rights that you might not yet know about. "Find Your Path" wants to support you to find your own path in your education and career, so you can live with beta thalassaemia and look to the future with optimism.

Aisha, Betroffene mit Beta-Thalassämie major

Aisha, a patient with beta thalassaemia major, from the United Kingdom

We have talked with Dr. El-Missiry from the Charité in Berlin about how those affected can balance their lives and deal with their beta thalassemia.

Look around

Causes and symptoms
What causes beta thalassaemia? How do you get it, and can you catch it? What symptoms might people with beta thalassaemia have?
Mindfulness with beta thalassemia
Is your condition getting to you? – Here you will find options and links where help is available.
Living a balanced life with your condition
Are you struggling to find happiness? Click here for tips and positive thoughts to help you achieve more balance in your everyday life.
Setting targets
Do you feel like you are in a rut? Take a look here at how you can celebrate the big and small victories!
Overcoming challenges at school or at work
School, job or university – Tips on how to make your everyday life easier
Community
Du willst andere Betroffene mit Beta-Thalassämie kennenlernen? Dann schau Dich hier im Community-Bereich um.
Zwei Computer-Tabs

Resource hub

Our downloadable documents will help you take control of your life with beta thalassaemia.